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Saoirse’s Story

Caledonia, New York - Meet 1 year old, Saoirse (pronounced “seer-sha”). Saoirse was diagnosed with Prader-Willi Syndrome (PWS) which is a complex genetic disorder. This condition causes numerous issues varying from weak muscle tone, feeding issues, poor growth, delayed development, and insatiable hunger which can lead to chronic overeating and obesity. Saoirse is a little fighter with an incredible light. Because of your unwaivering support, The LENN Foundation was able to fund 100% of Saoirse’s family’s request which included a medical expense along with their travel expenses (flight and hotel) to see a world-renowned PWS endocrinologist at the University of Florida along with a team of specialists. Saoirse was able to get the care and guidance needed to improve her quality of life.

With your support, EVERY penny counts.

Thousands of children diagnosed with cerebral palsy and genetic disorders have unmet medical needs not covered by private health insurance or government funded programs which is drastically hurting their quality of life. Families are being financially depleted with out of pocket medical expenses. Wheelchairs, therapy appointments, and communication devices are just a fraction of items not covered.  Together, lets bring a peace of mind to families one gift at a time.

We Value Transparency.

The LENN Foundation is privately funded by sponsors to cover operational expenses, grow exponentially, and most importantly, help families children who have cerebral palsy and genetic disorders pay for their unmet medical needs. We choose to run The LENN Foundation this way so you know that a 100% of your contribution is making a difference! View and download our 501c3 IRS tax exempt letter here.